Do any of you recall the first signs something wasn't right with your loved one? I know we all forget as we age but are there any other personality changes?
Thank you and God bless the ones that we've lost to this terrible disease.
I don't often write long messages here, so I will be as brief as possible because this topic is bigger than all of us as it touch's so many lives of the sufferers and the loved ones left to experience it.
My experience and understanding with losing a parent to this was aided by experts as we weekly attended class's to help us help my mother with this before we lost her to this 3 years ago.
What we learned was that the onset has so many complexions from verbal changes, memory changes, personality (anger or laughter) to physical changes in posture to walking gait.
For my mom the first sign was memory, she began to forget my sons name, and would laugh it off as, "you know, the big guy that takes my garbage out". it then progressed into thinking she could cook Eggo's in the coffee pot (I have pictures), again she would laugh it off.
She was a wonderful caring god fearing woman that was reduced to fragility of mind and body. We watched as over 2 years she was no longer remembering my dad and her marriage of 52 years, her grandchildren, us siblings, and what year it was, and to her, the president was Harry Trumann.
She was a Rosie the Riveter during WW2 making machine guns at Kelsey Hayes near Detroit, she could remember how much she made an hour in 1943, but not anything recent as an hour ago, nor was she able to feed herself any longer. Her doctor told us we could not care for her in our home any longer and she need to be in specialized care (it was an outstanding nursing home)
Here's the most important part I want to let people know that may be starting to experience this disease in a loved one. A Nurse specializing in Alzheimer's care at the Nursing facility worked hard at making us understand that my mom was "still in there" and proceeded to ask us questions about moms younger days and the moments that meant the most to her, I told the Nurse that she used to play piano by ear for her family, but had not done that for nearly 45 years, and that she was raised by her aunts, and was and urged/forced to play at family gatherings when she was a child, they would prompt her by saying "Beverly, make the music"
The Nurse wheeled my mom to the lobby of the care center where there was an old spinet piano, put her on the bench and asked her to play, she put her head down and said NO!, the Nurse then said, "Beverly, make the music", its aunt Carol talking to you! My mom pulled up the key cover, looked down at her feet and placed them on the pedals, and then said, "do you want to swing and sway with Sammy Kaye, or do you want Boogie?"
She started the Boogie Woogie stuff expertly for about 3 minutes as others began to wheel into the lobby, when she saw the crowd, she stopped and told them all to go home. She was done.
The nursed hugged her as we did, and then told us again, "these people are still in there, don't ever think they totally left us"